The EULAR´S repository of research databases

an initiative of the Standing Committee of Epidemiology and Health Services Research (SCHER)

Who manages the data of individual studies?

  • Principal investigators (PI) or responsible researchers of the individual databases, are the ones who will manage the data. They will check and update the information on their studies.
  • Each individual providing data will be given a username and a password to update the data on her or his database.
  • Investigators other than the PI can look at the information on the databases but never modify it.
  • Those who are potentially interested in a database can contact with the responsible of the database as presented in the repository for further details.
  • A monitor will:
    • provide the usernames and passwords
    • see and check the data entered
    • contact the PIs to confirm data or to check inconsistencies
  • The ERRD is coordinated by Dr Loreto Carmona, from the Research Unit of the Spanish Society of Rheumatology, member of the SCHER.